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Data Advisory Committee

The Data Advisory Committee (DAC) is an operating committee of the OPTN. The DAC is charged with regular review of the OPTN Data Collection Principles and ensuring that data collection activities are in alignment with these principles. The DAC is charged with overseeing all recommendations to the Board of Directors regarding the collection of official OPTN data that are pertinent to the operation of the OPTN, necessary for the development of evidence-based OPTN policies, and to support analytic work undertaken by the OPTN Contractor or the SRTR contractor to perform the tasks required under the respective contracts, the Final Rule, and NOTA. The DAC is charged with making recommendations to the Board of Directors to revise the OPTN Data Collection Principles as needed, to update OPTN data submission and release policies, to collaborate with other OPTN committees on additions, modifications, and deletions of the data elements collected by the OPTN, to improve completeness, accuracy, and timeliness of data collected, to enhance the official OPTN data with elements from other data sources, and any other recommendations and efficiencies for improving collection of official OPTN data.

Principles for Data Collection

Institutional members must provide sufficient data to OPTN to allow it to:

  • Develop transplant, donation, and allocation policies
  • Determine if Institutional Members are complying with policy
  • Determine Member-specific performance
  • Ensure patient safety when no alternative sources of data exist
  • Fulfill the requirements of the OPTN Final Rule

Monitoring and data reports

Monitoring reports

Department of Health and Human Services data directive

The Health Resources and Services Administration (HRSA) announced a directive for the OPTN to collect additional data on patients prior to waitlist registration and referrals of potential deceased donors to organ procurement organizations (OPOs). The OPTN Final Rule allows federal authorization of additional data collection to promote the efficiency of the OPTN.

Members of the OPTN Data Advisory Committee (DAC) and two OPTN workgroups have offered recommendations to HRSA regarding this initiative. The workgroups are:

Below are supporting materials, including the feedback DAC presented to HRSA on January 31, 2024, and the individual workgroup recommendations.

The proposed new data collection is intended for inclusion in a Federal Register notice of an Information Request Package (ICR) for review by the federal Office of Management and Budget (OMB). This will include draft forms and will seek public comment on the package for a 60-day period. The OPTN will prepare a response to the proposal with input from relevant stakeholder committees. For more information on the OMB review and approval process, see an overview presentation that was shared with the Data Advisory Committee.

Current Projects

Implemented

chair icon Chair
  • Dr. Sumit Mohan
  • NY Presbyterian Hospital/Columbia Univ. Medical Center
vicechair icon Vice Chair
  • Dr. Jesse Schold
  • University of Colorado Hospital/Health Science Center
liaison icon Liaison
Members Organization Position End Term Date
Ms. Adriana Alvarez Division of Transplantation, HHS Ex Officio (non voting) 6/30/2024  
Rebecca Baranoff General Public Region 4 At Large 6/30/2025  
Mrs. Jamie Bucio Trinity Medical Solutions At Large 6/30/2024  
Kate Giles University of Michigan Medical Center At Large 6/30/2026  
Dustin W Goad Arkansas Regional Organ Recovery Agency At Large 6/30/2026  
Dr. Michael G Ison General Public Region 11 At Large 6/30/2025  
Dr. Paul A MacLennan University of Alabama Hospital At Large 6/30/2025  
Dr. Michael R Marvin Geisinger Medical Center At Large 6/30/2025  
Christine Z Maxmeister University of Colorado Hospital/Health Science Center At Large 6/30/2025  
Mr. Christopher J McLaughlin Division of Transplantation, HHS Ex Officio (non voting) 6/30/2024  
Ms. Meghan E Muldoon Emory University Hospital At Large 6/30/2025  
Mr. Joel D Newman UNOS Employees Support Staff - Comms 6/30/2024  
Hellen A Oduor Methodist Dallas Medical Center At Large 6/30/2026  
Ms. Jennifer V Peattie Baylor University Medical Center At Large 6/30/2026  
Ms. Julie Prigoff Mayo Clinic Hospital Arizona At Large 6/30/2026  
Alicia Skeen Infinite Legacy At Large 6/30/2026  
Allen F Wagner University of North Carolina Hospitals At Large 6/30/2026  

Looking for something else? Contact us at unoscommunications@unos.org or (804) 782-4800. We maintain an archive of historical OPTN documents.